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Case Study

Patient Advocacy Digital Opinion Leader Engagement for Trial Awareness in Rare Oncology

How Adnexi engaged patient advocacy groups and digital opinion leaders to drive trial awareness in rare oncology.

Situation

A biopharmaceutical company conducting a clinical trial in a rare oncologic mutation hired Adnexi to increase awareness of the clinical trial via Patient Advocacy groups in cancer.

The Approach

  • Identify and profile Digital Opinion Leaders & PAGs
  • Engage in clinical trial awareness by providing IRB-approved materials with tracking codes
  • Adnexi identified, profiled and tracked Digital Opinion Leaders posting relevant content
  • Adnexi engaged selected DOLs to increase awareness
  • Adnexi provided already existing IRB-approved materials
  • Adnexi measured impact of DOLs

Results

17
Influential and credible PAG DOLs engaged in trial awareness effort
144
Discussion Guides downloaded by potential subjects to discuss with doctor
95
Pre-Screeners completed in 7 months
14
Subjects enrolled (18% of the trial)